About Brain and Neurological Disorders
The nervous system processes information gathered by our senses, controls the functions of organs, and enables thoughts, memories, and feelings. . It is made up of the central nervous system—the brain and spinal cord—and the peripheral nervous system—the vast network of neurons (nerve cells) that communicate messages throughout the body. Disorders and diseases that impact the nervous system can cause children to lose control of their movements, as happens with epilepsy and cerebral palsy. When a fall or impact affects the brain it is called a concussion, which can cause serious damage to the brain. Many children also suffer from painful headaches, which can be caused by many different things. Research into the nervous system and brain could impact many areas of health and wellness for children, helping them grow stronger physically and mentally.
Saliva and PPCS
Is your child 11-17 years old, in good health without chronic medical conditions not controlled by medication, and has NOT had a previous brain injury or other psychiatric disease? Your child may qualify to be in a research study to help us learn about head injuries in young athletes. The study visit involves answering survey questions and providing a saliva sample. Compensation is provided.
Mild TBI Study
Are you the parent of a child ages 12-17 who has had a concussion within the past 7 days? Your child may be able to participate in a study to learn more about how a concussion can impact the developing brain. This study involves 5 visits over 1 year, including up to 2 MRI scans. Eligible participants are right-handed. Flexible hours available. Compensation is provided.
Emotion Dysregulation Inventory-Self-Report – Ages 11-17 with an Intellectual or Developmental Disability (IDD)
Are you the parent of a child ages 11-17 who is diagnosed with an intellectual or developmental disability (IDD), such as Down syndrome, Williams syndrome, or Fragile X syndrome? You may be able to participate in a research study to help create a questionnaire that measures emotion regulation in teens and adults with IDD. Participants will complete online questionnaires. Compensation is provided.
Real World Testing of AAC-BCI
Does your child (age 14-17) have a have a severe or progressive communication disorder and need augmentative and alternative communication (AAC) clinical services? If so, they may be interested in participating in a study that would provide an AAC system with brain computer interface access that could be used in the home. Eligible participants need wheelchair assistive technology.
Electrode Headgear Testing Study
Does your child (age 14-17) use an augmentative and alternative communication (AAC) device? If so, they may be interested in helping researchers by testing a newly designed dry electrode headset. Involves 1 session lasting up to 4 hours that will include communication tasks, such as copying sentences and describing a picture, along with completion of an online survey. Compensation is provided.
Digital Therapeutics for Behavior Problems Study
Is your child between the ages of 5 and 8? You and your child may be able to participate in a research study to help us understand if a smartphone app is an effective way for parents and children with behavior problems to learn and use skills.
Speech and Language Development in Children Who Stutter
Are you the parent of a child aged 7-12 who currently stutters? Your child may be able to participate in a research study to learn more about how speech and language skills develop and mature in the brain. This study will involve 2-3 sessions, each lasting about 1.5 -2 hours. Eligible participants are native English speakers. Compensation is provided.
Smartphone Apps for Kids with Chronic Conditions
Do you have a child between the ages of 12-17 with spina bifida, spinal cord injury, traumatic brain injury, or cerebral palsy? If so, your child may be able to take part in a research study to evaluate if smartphone apps can help them manage their self-care routines. Compensation provided.
Spinal Cord Stimulation for the treatment of motor deficits in people with Spinal Muscular Atrophy – Age 16-17
Are you or your child affected by Spinal Muscular Atrophy? You may be able to participate in a research study using spinal cord stimulation (SCS), an approved clinical therapy for pain syndromes that do not respond to drugs. Unexpectedly, SCS has shown the ability to promote the recovery of leg motor function in people with complete motor paralysis
Are you the parent of a child (ages 7-17) who has a diagnosis of multiple sclerosis or a related disorder? If so, your child may be able to participate in a research study to help understand the factors that explain the differences among multiple sclerosis (MS) patients. Study involves answering questionnaires, reviewing medical records, and participating in other optional research activities.