Welcome to the Sickle Cell Anemia Studies Page

CURRENT STUDIES THAT MAY INTEREST YOU

MyPaTH Story Booth 2.0

Interested in sharing your story about health, illness, or research? Patients and caregivers are needed to participate in a research study to help learn more about topics that are important to you and that may improve health and health care. Participation involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.

ACL Tear

DURATION: 45 minutes

VISITS: 1 visit or phone call

LOCATION: By phone

COMPENSATION: NONE

NO IN-PERSON VISITS

MyPaTH Story Booth: Amplifying African American Voices and Healthcare Experiences

In follow-up of Black History Month, the Story Booth team is putting a special focus on stories from African American storytellers over the next 90 days. We would like to invite patients, caregivers, and health care providers to share their experiences regarding accessing health care. Your voices can empower change to research, patient-centered care, and most importantly, your community.

DURATION: 45 minutes

VISITS: 1 phone call

COMPENSATION: NONE

All of Us Pennsylvania Research Program

All of Us wants at least one million people to join. Your participation can help shape the future of health for generations to come. People who join will share information. This might be about their health, habits, and what it’s like where they live. It might also be about family history and genes. By looking for patterns, researchers may learn more about what affects people’s health.

VISITS: one in person visit

LOCATION: Convenient locations throughout Pennsylvania

COMPENSATION: $25.00 gift card

ACE Trial

Are you at least 65 years old? If so, you may be eligible to participate in a research study to determine if taking Equol, a plant-based supplement, could slow the progression of stiffening of the arteries, small blood vessel disease in the brain and memory decline. The ACE Trial is short for: Arterial Stiffness, Cognition and Equol.

Anemia

Blood/Lymphatic System

DURATION: 2 years

VISITS: 7 visits

LOCATION: Bellefield Professional Building, UPMC Montefiore Hospital & UPMC Presbyterian Hospital - Oakland

COMPENSATION: Up to $500

Vasculopathy and Hemorheology in SCD - Sickle Cell Carriers

Are you African American? Have you been diagnosed with sickle cell disease or sickle cell trait? You may be eligible for a research study to understand why some patients with sickle cell disease have abnormal blood vessel function. Compensation is provided.

Featured Research

Precision Medicine

Sickle Cell Anemia

AGE: 18 and older

DURATION: 2-3 hours

VISITS: 1 in-person visit

LOCATION: UPMC Benign Hematology Clinic (Falk Building)

COMPENSATION: $25 per hour

Vasculopathy and Hemorheology in SCD - Healthy Controls

Are you African American? Are you a healthy person without sickle cell disease or sickle cell trait? You may be eligible for a research study to understand why some patients with sickle cell disease have abnormal blood vessel function. Compensation is provided.

AGE: 18 and older

DURATION: 2-3 hours

VISITS: 1 in-person study visit

LOCATION: UPMC Benign Hematology Clinic (Falk Building)

COMPENSATION: $25 per hour

Genomic Approaches to Recurrent Pregnancy Loss Study

Are you a woman between the ages of 18 and 37 who has experienced a pregnancy loss? You may be able to participate in a study that hopes to better understand the genetic basis of recurrent pregnancy loss.

Chromosomal Disorders

SEX ASSIGNED AT BIRTH: Female

DURATION: 2 Days

LOCATION: Oakland

COMPENSATION: NONE

Spinal Cord Stimulation for the treatment of motor deficits in people with Spinal Muscular Atrophy

Are you affected by Spinal Muscular Atrophy? You may be able to participate in a research study using spinal cord stimulation (SCS), an approved clinical therapy for pain syndromes that do not respond to drugs. Unexpectedly, SCS has shown the ability to promote the recovery of leg motor function in people with complete motor paralysis in consequence of spinal cord injury years after injury.

DURATION: 9 months

VISITS: 35 visits

LOCATION: UPMC Presbyterian

COMPENSATION: $1750

RELATED RESEARCH AREAS:

Genetic Disorders, Blood/Lymphatic System