Welcome to the Sickle Cell Anemia Studies Page

CURRENT STUDIES THAT MAY INTEREST YOU

Smart Home Service Delivery

Are you having difficulty interacting with or controlling your environment, due to either physical, cognitive, and/or sensory impairments? You may be eligible for a research study to evaluate a smart home technology service delivery program for people with disabilities. Compensation is provided.

Assistive Devices

Chromosomal Disorders

Cystic Fibrosis

Genetic Disorders

And 8 more areas

AGE: 18 and older

DURATION: up to 1.5 years

VISITS: up to 12 sessions

LOCATION: Virtually via zoom, at the UPMC Center for Assistive Technology (CAT), the Life Skills Apartment at Mercy Pavillion or at your home.

COMPENSATION: up to $100

All of Us Pennsylvania Research Program

All of Us wants at least one million people to join. Your participation can help shape the future of health for generations to come. People who join will share information. This might be about their health, habits, and what it’s like where they live. It might also be about family history and genes. By looking for patterns, researchers may learn more about what affects people’s health.

VISITS: one in person visit

LOCATION: Convenient locations throughout Pennsylvania

COMPENSATION: $25.00 gift card

NO IN-PERSON VISITS

MyPaTH Story Booth 2.0

Interested in sharing your story about health, illness, or research? Patients and caregivers are needed to participate in a research study to help learn more about topics that are important to you and that may improve health and health care. Participation involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.

DURATION: 45 minutes

VISITS: 1 visit or phone call

LOCATION: By phone

COMPENSATION: NONE

Spinal Cord Stimulation for the treatment of motor deficits in people with Spinal Muscular Atrophy

Are you affected by Spinal Muscular Atrophy? You may be able to participate in a research study using spinal cord stimulation (SCS), an approved clinical therapy for pain syndromes that do not respond to drugs. Unexpectedly, SCS has shown the ability to promote the recovery of leg motor function in people with complete motor paralysis in consequence of spinal cord injury years after injury.

DURATION: 9 months

VISITS: 35 visits

LOCATION: UPMC Presbyterian

COMPENSATION: $1750

RELATED RESEARCH AREAS:

Genetic Disorders, Blood/Lymphatic System