Welcome to the Sickle Cell Anemia Studies Page

CURRENT STUDIES THAT MAY INTEREST YOU

Improving Pain Care for People with Sickle Cell Disease

Have you been diagnosed with sickle cell disease? You may be eligible for a research study to learn more about the problems people with sickle cell disease face and how they cope with them. This research study involves two online surveys (about 30 minutes each) completed over the course of six months (baseline; 6-month follow-up). Compensation is provided.

Sickle Cell Anemia

AGE: 18 and older

DURATION: 6 months

VISITS: 2 surveys

LOCATION: Online

COMPENSATION: Up to $90 for participation

Adapting SBAR3 for Patients with Sickle Cell Disease

Are you an adult living with Sickle Cell Disease? You may be eligible for a research study to learn about how patients living with sickle cell disease communicate with their doctors, nurses, and other healthcare providers. This study is also being conducted to create tools for people with sickle cell disease to use when talking to healthcare providers about their health. Compensation provided.

Sickle Cell Anemia

AGE: 18+

DURATION: up to 2 hours

VISITS: 1 questionnaire and 1 video-recorded interview

LOCATION: face-to-face or virtually

COMPENSATION: $30 for completing the questionnaire and interview

RELATED RESEARCH AREAS:

Genetic Disorders, Blood/Lymphatic System