Welcome to the Huntington Disease Studies Page

CURRENT STUDIES THAT MAY INTEREST YOU

Smart Home Service Delivery

Are you having difficulty interacting with or controlling your environment, due to either physical, cognitive, and/or sensory impairments? You may be eligible for a research study to evaluate a smart home technology service delivery program for people with disabilities. Compensation is provided.

Assistive Devices

Chromosomal Disorders

Cystic Fibrosis

Genetic Disorders

And 8 more areas

AGE: 18 and older

DURATION: up to 1.5 years

VISITS: up to 12 sessions

LOCATION: Virtually via zoom, at the UPMC Center for Assistive Technology (CAT), the Life Skills Apartment at Mercy Pavillion or at your home.

COMPENSATION: up to $100

REGISTRY

NO IN-PERSON VISITS

Movement Disorders Research Registry

Do you have a movement disorder? If so, you may be able to participate in the Movement Disorders Registry. This registry is a list of individuals who are interested in being contacted about future research studies.

VISITS: None Required

LOCATION: By email or phone

COMPENSATION: NONE

NO IN-PERSON VISITS

MyPaTH Story Booth 2.0

Interested in sharing your story about health, illness, or research? Patients and caregivers are needed to participate in a research study to help learn more about topics that are important to you and that may improve health and health care. Participation involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.

DURATION: 45 minutes

VISITS: 1 visit or phone call

LOCATION: By phone

COMPENSATION: NONE

Spinal Cord Stimulation for the treatment of motor deficits in people with Spinal Muscular Atrophy

Are you affected by Spinal Muscular Atrophy? You may be able to participate in a research study using spinal cord stimulation (SCS), an approved clinical therapy for pain syndromes that do not respond to drugs. Unexpectedly, SCS has shown the ability to promote the recovery of leg motor function in people with complete motor paralysis in consequence of spinal cord injury years after injury.

DURATION: 9 months

VISITS: 35 visits

LOCATION: UPMC Presbyterian

COMPENSATION: $1750

Enroll-HD

Are you the spouse, caregiver, or family member of someone affected by Huntington’s disease (HD)? If so, you may be able to participate in a research study that is collecting data in an effort to improve understanding and treatment of Huntington’s disease (HD).

Huntington Disease

Other Brain and Nervous System

AGE: 18 and up

VISITS: Once per year

LOCATION: Kaufmann Medical Building Oakland

COMPENSATION: Travel Reimbursement

RELATED RESEARCH AREAS:

Genetic Disorders