Do you have Down syndrome or are you a caregiver for someone with Down syndrome? If so, you may be able to participate in a research study to help gather feedback about how people in the Down syndrome community feel about common research procedures. This study involves completing one online survey. Some participants may also be invited to participate in a phone interview. Compensation provided.
Online & By Phone
$25 for completing the online survey & $50 for completing the telephone interview
AGE: 18 and up
DURATION: Up to 6 months
VISITS: 1 online survey & 1 phone call
LOCATION: Online & By Phone
COMPENSATION: $25 for completing the online survey & $50 for completing the telephone interview
Do you have Down syndrome? You may be able to participate in a study to identify those things that can predict which adults with Down syndrome are most likely to develop Alzheimer’s disease. Eligible participants must have a “study partner” who knows them well and is willing to provide information about their medical status and abilities. Compensation is provided.
UPMC Western Psychiatric Hospital, UPMC Western Behavioral Health, & UPMC Presbyterian Hospital – Oakland
Up to $1400
AGE: 25 and up
DURATION: 5-6 years
VISITS: Up to 4 visits over the course of the study
LOCATION: UPMC Western Psychiatric Hospital, UPMC Western Behavioral Health, & UPMC Presbyterian Hospital – Oakland
COMPENSATION: Up to $1400
Are you the legal guardian of an adult diagnosed with Down syndrome or Fragile X syndrome? You may be able to participate in a research study to help create a questionnaire that measures functioning in adults with developmental disorders. Participants will complete assessments and interviews. Compensation is provided.
Videoconference
$100
AGE: Legal guardian of an individual age 18 and up
DURATION: 2-3 hours
VISITS: 1-2 visits
LOCATION: Videoconference
COMPENSATION: $100
Are you an adult diagnosed with Down syndrome or Fragile X syndrome? You may be able to participate in a research study to help create a questionnaire that measures functioning in adults with developmental disorders. Participants will complete assessments and interviews. Compensation is provided.
VISITS: 1-2
You may be able to change the future of medicine. The All of Us PA Research Program is enrolling adults 18 years of age or older. This may be your chance to improve how your children and your children’s children receive medical care.
Convenient locations near you including Altoona, Monroeville, North Hills, Oakland, Philadelphia, Shadyside, the South Hills and more!
$25.00 gift card
VISITS: one in person visit
LOCATION: Convenient locations near you including Altoona, Monroeville, North Hills, Oakland, Philadelphia, Shadyside, the South Hills and more!
COMPENSATION: $25.00 gift card
Participants are invited to share how they are maintaining their health during the coronavirus pandemic, or to share what it is like being ill with COVID-19 and/or caring for a loved one who is ill with COVID-19. Participation in this research study involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.
By phone
NONE
DURATION: About 45 minutes
VISITS: No in-person visits
LOCATION: By phone
COMPENSATION: NONE
Interested in sharing your story about health, illness, or research? Patients and caregivers are needed to participate in a research study to help learn more about topics that are important to you and that may improve health and health care. Participation involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.
DURATION: 45 minutes
VISITS: 1 visit or phone call
Are you a female aged 18-45 who has been diagnosed with Von Willebrand Disease (VWD)? Do you experience heavy menstrual bleeding? If so, you may be able to participate in a research study to compare two different treatments for VWD. This study involves 4 visits over 24 weeks and one baseline blood draw. Compensation is provided.
Hemophilia Center of Western Pennsylvania – Boulevard of the Allies - Oakland
$100 per visit (up to $400)
AGE: 18 - 45
SEX ASSIGNED AT BIRTH: Female
DURATION: 24 weeks
VISITS: 4
LOCATION: Hemophilia Center of Western Pennsylvania – Boulevard of the Allies - Oakland
COMPENSATION: $100 per visit (up to $400)
Adults aged 18-21 with Down syndrome who have sleep apnea after a tonsillectomy are needed for a research study. The purpose of this research study is to find out if a surgically implanted nerve stimulator called The Inspire® System is safe and effective in treating sleep apnea. Study involves at least 9 visits over 1 year.
UPMC Children’s Hospital of Pittsburgh
AGE: 18 - 21
DURATION: 1 year
VISITS: 9 visits
LOCATION: UPMC Children’s Hospital of Pittsburgh
Are you age 18 or older with a diagnosis of biliary atresia? Have you had the Kasai procedure (surgery to improve bile flow)? If so, you may be able to participate in a research study to learn more about the long term health of patients who have had the Kasai procedure. Participation by parents is voluntary. Compensation for transportation provided.
UPMC Children’s Hospital of Pittsburgh - Lawrenceville
Yes
DURATION: Varies
LOCATION: UPMC Children’s Hospital of Pittsburgh - Lawrenceville
COMPENSATION: Yes
