https://pittplusme.org/study/improvingpain
Improving Pain Care for People with Sickle Cell Disease
STUDY BASICS
Have you been diagnosed with sickle cell disease? You may be eligible for a research study to learn more about the problems people with sickle cell disease face and how they cope with them. This research study involves two online surveys (about 30 minutes each) completed over the course of six months (baseline; 6-month follow-up). Compensation is provided.
STUDY PURPOSE
The purpose of this study is to learn more about the problems people with sickle cell disease face and how they cope with them in order to help improve pain care. This study wants to explore the relationship between stigma and pain in people living with sickle cell disease.
COULD THIS STUDY BE RIGHT FOR YOU?
- 18 years or older
- Diagnosed with sickle cell disease
- Have access to a device with internet
WHAT PARTICIPANTS CAN EXPECT
- 2-minute online eligibility screener
- Two 30-minute online surveys over the course of six months
- $40 after completing the baseline survey and $50 after completing the follow-up survey
IRB: STUDY25030063
- Establishing the impact of intersectional stigma on pain among adults with sickle cell disease
MEET THE RESEARCHER
Lakeya McGill
Dr. Lakeya McGill is an assistant professor and a clinical psychologist at the University of Pittsburgh School of Medicine. She aims to establish high-quality pain care for adults with sickle cell disease. She hopes to collaborate with the sickle cell and pain communities to develop culturally appropriate and multi-level pain treatments.
MEET THE COORDINATOR
Emily McFerran
Emily began working as a Clinical Research Coordinator for Dr. Karlyn Edwards and Dr. Lakeya McGill in 2024. Previously, she worked as an Immunotherapy Research Technician at Pitt from 2021-2024. She graduated from Dickinson College with a double major in Biochemistry & Molecular Biology and Dance and a minor in Math.