Are you the parent of a child ages 11-17 who is diagnosed with an intellectual or developmental disability (IDD), such as Down syndrome, Williams syndrome, or Fragile X syndrome? You may be able to participate in a research study to help create a questionnaire that measures emotion regulation in teens and adults with IDD. Participants will complete online questionnaires. Compensation is provided.
The purpose of this study is to create a self-report questionnaire that measures emotion regulation in autistic teens and adults and teens and adults with IDDs. Researchers hope their findings lead to better ways to assess emotion regulation in these individuals in the future.
COULD THIS STUDY BE RIGHT FOR YOUR CHILD?
- Child ages 11-17
- Diagnosed with an intellectual or developmental disability (IDD), including but not limited to Angelman syndrome, Down syndrome, Fragile X syndrome, Prader-Willi syndrome, and Williams syndrome
WHAT PARTICIPANTS CAN EXPECT
Participation will take place online. You and your child will be asked to complete questionnaires.
IRB: STUDY20030055D- Developing the Emotion Dysregulation Inventory Self Report (EDI-SR)
MEET THE RESEARCHER
Carla A. Mazefsky, PhD, is a Professor of Psychiatry at the University of Pittsburgh. Dr. Mazefsky is a graduate of the Virginia Commonwealth University where she received her PhD in Clinical Psychology. She received her postdoctoral training at the Virginia Institute for Psychiatric and Behavioral Genetics. Dr. Mazefsky’s research interests include emotion regulation as a critical mechanism in autism spectrum disorders.