BRIDGE-CCI - Family Members

STUDY BASICS

Help Us Build a Program to Support Families of Patients with Prolonged Critical Illness. This research study is looking for family members to partner with us, alongside clinicians and administrators, to design BRIDGE-CCI — a new program to give families the support and guidance they need throughout a family member’s prolonged critical illness. Compensation is provided.

STUDY PURPOSE

Families have consistently described experiencing breakdowns in communication and support across the patient’s prolonged critical illness and different care settings, including the ICU, long-term acute care hospital (LTACH), and/or nursing home. In response to what families have shared, this research study is building a program called BRIDGE-CCI to support families going through this experience. But we can’t build it without you.

COULD THIS STUDY BE RIGHT FOR YOU?

Are 18 years or older and have helped make decisions for an adult family member or friend who:

• Became critically ill and used a breathing machine (ventilator) for weeks to months and
• Helped make decisions for them in the ICU and after the ICU, in a long-term acute care hospital (LTACH) and/or a nursing facility

WHAT PARTICIPANTS CAN EXPECT

• Becoming part of a small group of families that meets ~8-10 times starting January · ~60 minutes each · ~ 6-8 months. We can also offer some sessions one-on-one or asynchronously
• Sessions held every 2–3 weeks, though the exact number and timing may vary based on what we learn from you along the way
• Sessions held remotely via Zoom. Unfamiliar with Zoom? No worries, we will help you!
• Brief survey at the start, participate in short activities during the sessions, a quick rating after each session, and a survey about your overall experience at the end of the study
• Your input and perspectives will be gathered alongside those of clinicians and administrators, so the program truly reflects what matters most to families and can work in real life
• $60 per session