About Caregiver Health
Caregivers play a vital support role for people with chronic health conditions, mental and physical disabilities, Alzheimer’s disease and other forms of dementia, and many other health problems. Studies for caregivers may recruit professional caregivers or unpaid caregivers such as family members or friends who provide assistance. Research involving caregivers may focus on reducing stress associated with caregiving, testing tools for caregivers, or gathering feedback from caregivers about new devices or online programs designed to make caregiving easier.
Developing Educational Materials for Adults with Down Syndrome
Do you have Down syndrome or are you a caregiver for someone with Down syndrome? If so, you may be able to participate in a research study to help gather feedback about how people in the Down syndrome community feel about common research procedures. This study involves completing one online survey. Some participants may also be invited to participate in a phone interview. Compensation provided.
Do you have Down syndrome (DS), or are you the guardian of an adult with Down syndrome? You may be able to participate in a study of how your health and your belief in yourself helps you do the things you want to do. Participation in this study involves completing online surveys. Guardians are permitted to help the person with DS access the surveys, if needed. Compensation is provided.
All of Us Pennsylvania Research Program
You may be able to change the future of medicine. The All of Us PA Research Program is enrolling adults 18 years of age or older. This may be your chance to improve how your children and your children’s children receive medical care.
Adult Functioning Scale Study – Caregivers
Are you the legal guardian of an adult diagnosed with Down syndrome, Williams syndrome, or Fragile X syndrome? You may be able to participate in a research study to help create a questionnaire that measures functioning in adults with developmental disorders. Participants will complete assessments. Compensation is provided.
Experiences of Return-to-Work in Registered Nurses with Cancer
Are you a nurse who has been treated for cancer? You may be able to participate in a study about your return-to-work experiences. Participation involves completing a 10-15 minute questionnaire and a 90-120 minute focus group interview. Compensation is provided.
Caregiver Assisted Transfer Technique Instrument (CATT) Evaluation Study – Caregiver
Do you routinely provide transfer assistance to an adult with a physical disability? You and your care recipient may be able to participate in a study to evaluate CATT by using it to find out how individuals with physical disabilities and their caregivers perform assisted transfers. Eligible participants have served as a caregiver for at least 3 months. Compensation is provided.
SHUTi - CARE Study
Are you a family caregiver helping a loved one to take care of themselves? Are you having trouble sleeping? You may be able to participate in a study to help researchers understand how well an online insomnia intervention called SHUTi helps caregivers. This study involves completing online surveys and trying out the online SHUTi program. Compensation is provided.
MyPaTH Story Booth 2.0
Interested in sharing your story about health, illness, or research? Patients and caregivers are needed to participate in a research study to help learn more about topics that are important to you and that may improve health and health care. Participation involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.
MyPaTH Story Booth – COVID-19 Stories
Participants are invited to share how they are maintaining their health during the coronavirus pandemic, or to share what it is like being ill with COVID-19 and/or caring for a loved one who is ill with COVID-19. Participation in this research study involves one 45-minute session that takes place over the phone. Eligible participants must be able to read and understand English.
Grief and Bereavement Overload Study
Are you a current Pitt/UPMC medical resident or fellow? You may be able to participate in a survey study designed to learn about bereavement and grief among medical trainees. This research study involves completing one 10-minute online survey.