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STUDY BASICS

Are you the legal guardian of an adult diagnosed with Down Syndrome (DS), Williams Syndrome (WS) or Fragile X Syndrome (FXS)? You may be able to participate in a research study to help researchers create a questionnaire that measures functioning levels in adults with developmental disorders. Participants will complete assessments and cognitive interviews. Reimbursement will be offered.


IRB:
  STUDY19080355B - Developing a Gold Standard for Tracking Adult Functional Outcomes in Autism Spectrum Disorder



NO IN-PERSON VISITS REQUIRED
 
Age Range
AGE:   Legal guardian of an individual age 18 and up

Duration DURATION:  2-3 hours
VISITS:  1-2 visits

Location LOCATION: 
Videoconference
Compensation COMPENSATION: 

$100

Phone Number PHONE NUMBER:
1-866-438-8230
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Phone Number PHONE NUMBER:
1-866-438-8230

MEET THE RESEARCHER


Carla Mazefsky

Carla A. Mazefsky, PhD, is an Associate Professor of Psychiatry at the University of Pittsburgh. Dr. Mazefsky is a graduate of the Virginia Commonwealth University where she received her PhD in Clinical Psychology. She received her postdoctoral training at the Virginia Institute for Psychiatric and Behavioral Genetics. Dr. Mazefsky’s research interests include emotion regulation as a critical mechanism in Autism Spectrum Disorders.




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